Lupus Doesn't Stop Shannon Boxx
Olympic soccer midfielder. Gold medal. Lupus. Awesome. Read her story here.
Hello again. How have you been? I hope all is well in your world. I’ve been pretty happy and healthy these days and turns out - it’s a much better way to live. Remember last year when I was confined in the house due to you know what? Well Jed and I had to get creative with how we passed the time. So we started making some new tunes and now we have this EP that we’d like...
Balance In Progress: Part II - Let It Go
Last week on “It’s So Not Sexy”… Mo finally broke her silence and revealed where the hell she had been for the past several months. Turns out she was roaming the streets, down on her luck, at the end of her rope. Lupus was being a real pill. The chemo wasn’t working and she had lost all hope, thinking it’d got her beat… until she met a nice dame who showed her the way to a strange...
Lust For Love First Look!
The Hollywood Reporter has the first look at the sweet little indie romantic comedy that we were able to make thanks to you. Check out the article here. Please and thank you.
I #PutOnPurple Today
Put On Purple today for Lupus Awareness Month. For more information on how to raise awareness go to http://www.lupus.org/newsite/pages/lupus-awareness-month.html (And yes, Balance In Progress Part II is coming soon… Argh, I’m sorry!)
Lupus Now Magazine
Many thanks to the Lupus Foundation Of America for giving me the chance to be a cover girl! Check out the Spring Issue of Lupus Now.
Balance In Progress: Part I - Desperate Measures
It’s a never-ending clusterfuck. This thing I have. It rarely leaves me alone. I think that’s the most unsettling part of living with a chronic illness. Some days are fine, other days not so much, and you never know if or when it’s going to strike hard again. Which would provoke a good amount of fear, don’t you think? And living in fear isn’t the most awesome way to pass the time, especially...
Nerdist Writer's Panel This Sunday - Feb 12th
Wanna come? We’ll be there to talk about writing! I think. Click here for tickets.
Remember me? It’s been a while. I know it seems as if I’ve toppled off the face of the earth and plummeted into an abyss of silence. Though I’ve posted a few photos and silly videos since my last substantial update on my health (which wasn’t the most uplifting note to leave you with), I have been keeping mum on what’s been going on with me. But I assure you,...
We used Demir and Enver Gjokaj’s new app - Reeli - to make this home movie about being… at home. Instant mini-movie making on your iPhone. Pretty damn nifty if you ask me.
The Guild: The Guild Season 5 DVD now available on... →
watchtheguild: The Guild Season 5 DVD is now available via Amazon.com, with a release date of December 13, 2011. Picking up where season four left off, season five takes the Guild members out from behind their computers and throws them into the real world like the show has never seen before, with…
Sing it with me - "It's My Party..."
“And I’ll…” Well, you know the rest. Yesterday was my birthday and I have to thank all of you for making it a special one with your wonderful wishes and gifts and love. You kept me smiling throughout the day… despite the crying. Yeah, I did some of that shit yesterday. It was unrestrained and unattractive. With the heaving and the snot and the animals-in-pain...
The Voodoo That's Doo-doo
You name it, I’ve done it. I’m that kind of woman. I’m not afraid to experiment. I’m game for anything even if it seems too crazy. And if I’m not satisfied, I move on to the next “big thing”. Meditation, hypnosis, emotional freedom technique, shamanic healing, pranic healing, qigong healing, ionic foot baths, infrared saunas, pneumatic compression,...
Rhonda and Rita Zotski. Interior Design Duo. Owners of Decor Du Jour in Tarzana. We’re into chandeliers and gold accents. It was fun putting makeup on Jed. And finding lady clothes that would fit him. And I wish I actually had hair like this. Happy Halloween!
I Wish I Wanted To Go To Burning Man
It’s been a rough week… I’ve been holed up in bed mostly. I went with the mind-numbing course of recovery this time around. A combo of procedural drama repeats, random movies starring Matt Damon, and extensive perusal of The Book Of Face. And while perusing the countless pictures of adorable babies my friends just had, I came across a plethora of photos capturing...
The idea of making a movie with friends is thrilling. But as of right now, it’s just an idea. Well, there’s a script. A compelling, heartwarming, funny script written by Anton King (who directed the Remains video). And there are great actors attached like Fran Kranz, Dichen Lachman, Caitlin Stasey, and many more (including some chick who has lupus). You can help us turn this...
Eh. I guess. If you like that sort of thing. →
I Got Mail
This is what happens when I remember to check our separate mailbox. I get awesome goodies that make me happy! Like this — Thank you so much Abby for this portrait and your sweet sweet letter. Will you send me your address in a private tumblr email? Perhaps I have some goodies for you too. And I also received this from the awesome Joey Spiotto. Thank you Joey! I’ll be...
Things aren’t going quite as planned. Things have obviously improved, which is good, but I’m not where I was expected to be post Cytoxan #6. I’ve basically reached a plateau. A plateau called “Your Kidneys Still No Wanna Work So Good”. Why this plateau has an accent, I have no idea. Maybe because I watched a bit of “I Love Lucy” today. I blame...
Walk For Lupus Now 2011
I consider myself a good Samaritan. I donate to charities. I hold doors for people and let older folks walk before me into elevators and such. If I can tell the girl next to me in the Bloomingdales dressing room is doubting whether or not that dress looks good on her, I’ll tell her she looks beautiful. Because she does. And if she looks ridiculous, I’ll blame the dress. If I see...
Ladies and Gents. Please feast your eyes on this beautiful video, animated by the very talented Efehan Elbi, for Jed’s song “Ancestors”. If you haven’t listened to my brilliant husband’s album, History Of Forgotten Things, you must do so now by going to www.jedwhedon.com. May you have wistful dreams after this experience. Thank you and good night.
The Guild Season Five Episode 7
Check out the latest episode of The Guild! More awesome cameos and more Steampunk madness. If you like that sort thing… Enjoy.
I have absolutely no reason to be thinking about such things. It’s been a good day. My Aunt came to visit, she brought me a bunch of goodies, I wore my new pair of Run Tones (which are basically Shape Ups) on our walk around the neighborhood (yes, I am now the proud owner of sneakers that promise to tone my calves and buttocks), it was gorgeous out, I didn’t feel terrible at all...
The Guild: The Guild Season 5, Episode 05: "Focus... →
This season of The Guild is so damn good I can’t take it. Hope you’re watching. If not, you’re missing out on some great story and belly laughs. The cast is rocking it. Such fine Thesps! I’m a big fat fan. thisfeliciaday: This has the best ending to an ep this whole season, check it out! watchtheguild: Episode 05, ” Focus Problems ” is now available on the web...
Acting a Fool
I’m all up on THE GUILD (click it - I realized some people aren’t aware that the underlined texts are links). I had a blast getting to play with all the awesome people I adore on the show and in real life. Thankfully, I was able to shoot this right before my kidneys went kaput. I think a week after working on the show, my doctors told me I had to go in for the kidney biopsy. So...
It's Zack's Birfday!
Look at that. He’s the dopest mofo around. I’m a lucky lady to have him as my bro-in-law. Let’s wish him a happy one @zdubdub (that’s his dope ass Twitter account). I love you Zacker!
So this was my day today… Allow me to explain a few things: The ice pack on my head helps to limit the blood circulation in my scalp during the infusion to prevent the drug from tampering with my follicles, therefore reducing hair loss. Does it actually work? According to my clogged shower drain, no, but I do it any way because I want to hold on to as much hair as possible. Even if...
I found this video of me at a Silent Disco. I believe it expresses how happy raising over $12K in two days makes me feel. Thank you SO much for donating to our team for WALK FOR LUPUS NOW. Being this giddy all the time is definitely helping me through this flare. I heart you tons.